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Allie Carbery

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I'm challenging 27 to fight MND

Hi everyone,

I'm taking part in FightMND's Challenge 27 to challenge not just my wellness goals, but also the Beast and be part of the fight towards a world free from MND.  

Challenge 27 is a powerful reminder that the average life expectancy for someone diagnosed with MND is just 27 months.

If you can, please support me by donating to my page. Every dollar counts, and all funds raised go to support FightMND’s mission to find a cure for motor neurone disease. 

Your support means a lot to me!

Thanks! 

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My Updates

27 Minutes for the Fight: Honouring Shane and Fighting for a Cure

Thursday 14th Aug
Introduction

This September marks 10 years since my late husband, Shane, lost his battle with motor neurone disease (MND). Shane was a truly extraordinary man—so giving that he’d give you the shirt right off his back. Loved by many, he was the kind of person who left a lasting impression wherever he went.

In his honour, I’m taking part in “27 mins for the Fight MND”. Every day during the challenge, I will be exercising for at least 27 minutes—pushing myself physically while raising funds to fight this devastating disease. It may only be 27 minutes each day, but together, it can mean so much.

Why 27 Minutes?

In MND, the average life expectancy from diagnosis is tragically short—just around 27 months. This number has profound significance, a reminder of time lost—and the precious time still to be won by advancing research. That’s why my commitment is 27 minutes every single day—to honour Shane’s courage and to fuel the fight for others still battling the Beast.

A Decade of Impact: What Fight MND Has Achieved

Thanks to supporters like you, Fight MND has made remarkable strides:

1. Major Funding for Cure & Care

Since 2014, over AU$117 million has been invested in research and care projects to benefit Australians living with MND.

Funding has supported 15 clinical trials and 34 drug development projects, helping put Australia at the forefront of MND research.

2. Groundbreaking Research & Trials

Clinical trials such as METFLEX (testing Trimetazidine across Brisbane, London, and Utrecht) and promising molecule-based therapies like mEphA4-Fc are pushing boundaries.

Early diagnosis and treatment projects, led by dedicated researchers, are giving new hope for the future.

3. Caring Investments That Matter

Over AU$16.49 million has been directed toward care—improving guidelines, assistive tools, nutrition support, and care coordination.

Programs like “A Friend’s Place” help children and families cope with the emotional impact of MND.

4. A National Movement

The annual Big Freeze at the ‘G has become an iconic event, raising over AU$115 million to date.

Communities across Australia unite under the blue beanie, showing the power of collective action.

Why Your Support Matters

Thirteen years ago, Shane began to face this cruel disease. Today, I see the difference that every dollar, every trial, and every beanie has made.

By joining me in supporting 27 mins for the Fight MND, you’ll be helping to fund groundbreaking research, improve care for people living with MND, and bring us closer to a cure. My daily 27-minute exercise is a reminder that while MND can take so much, it can’t take away hope, love, or determination.

How You Can Help

Donate to my “27 mins” challenge—every contribution counts.

Share this blog or your own story using hashtags #FightMND and #27MinsForTheFight.

Buy a blue beanie—it’s more than just warm, it’s a symbol of hope.

Shane was generous beyond words, always giving, always caring. On this tenth anniversary, I choose to honour him with action—27 minutes a day dedicated to a cause that means so much.

If you’re reading this, thank you. In making time—just 27 minutes—you’re helping turn memory into movement, heartbreak into hope, and a fight into a future.

Together, we remember. Together, we fight.

Thank you to my Sponsors

$315

Kim

Well done…Super bloody effort

$211

Wayne & Amanda Griffin Balls

Miss our Shano…Lives forever in our hearts

$110.24

Reyd Nicholson

$106.12

Vicki B

Great work Allie xxoo

$106.12

Luan Swanick

Go Allie, your an inspiration. Enjoy your walks in this magic qld weather :). Wish I could give more. Hi Zeus from Patch. X❤️

$106.12

Barb Talbot

All my love ❤️🥰🙏

$106.12

Katy

I completely agree, love that you are doing this and I truly hope that treatments, a cure and better lives for sufferers are closer with the support from this effort❤️‍🩹 Love to you all Allie xxx

$106.12

Mum And Dad Carbery

Good on you Darling We are so proud of you. WE NEED TO FIND A CURE LOVE YOU Mum and Dad C xx💙💙

$106.12

Heather Adam And Mitch

$106.12

Taylor & Morgan

We love you guys

$106.12

Karl Thew

❤️

$65.72

William Tai

Thank you Allie and very nice you know you. From William Tai—-Taiwan

$59.41

Susan Jess Emma Windsor

$59.41

Karen Mcmillan

Good on you Allie.

$59.41

Lisa Moffat

Well Done Allie 🫶 💛 Keep up the good work XO

$59.41

Cristina Chirico

You go girl! So proud of you and all of your efforts.

$59.41

Mum And Dad.

You are a great ambassador for MND. Dad and I are so proud of you, in helping to support this fight for people who are suffering this dreadful disease.

$59.41

Linda

Really proud of your achievements. You are doing such an amazing job advocating for this important fight.

$59.41

Colleen

Mega bless & mega hugs xxxx

$59.41

Ursula Cummins

$54.12

Tracey Peirce

$54.12

Amy

Smashing it mum x

$54.12

Joey, Lisa & Blake Mckinlay

Go Allie!!! Much love from the 3 of us xxx

$54.12

Uncle Karl & Aunty Louise

Well done honey. Shane will remain forever in our hearts and he is there watching over you, feeling very proud, I’m sure love you 🩵

$54.12

Kell

Love you allie..Shane would be so stoked you are doing this and fighting for others that have had to endure what you and he and Amy and Luke had too

$50

Brooke Gilbert

Good on you girlfriend ❤

$48.71

Anonymous

$43.60

Evelyn

Lots of love.

$33.15

Mich

I truly wish the government would invest in MND there's so much recognition but not much help from Governments Come on Aussie/NZ Any MND walks soon Allie? I wear my MND tshirt alot

$30

Kerianne Gosnell

You've done amazing!

$29.90

Ange

You’ve got this!! Wish I could do it with you to support. Love you 😘

$29.90

Shannon Meredith

Go Allie!! WOOHOO🩷🩷

$29.90

Mark

10yrs on and still thing about you guys all the time. Sending lots a love to you and yours.

$29.90

Allie Carbery

$29.90

Ann Dickinson

$29.90

Nicky Burton

Love this. Good Luck Ally 💙

$29.90

Tania

$29.90

Rochelle Baxter

$29.90

Mel

Loving the videos of you & im thinking of your darling Shane with the fondest memories

$27.81

Krissy Hill

Lots of Love

$27.81

Claire Tiplady

Big hugs xoxo

$27.81

Amy Carbery

$27

Mel W

You got this Allie..Shane would be proud

$22.58

Annabel

In loving memory of Shano 🥰

$22.58

Krissy Hill

$22.58

Cliff

Well done Allie

$22.58

Meagan

Sending love Allie💞

$22.58

Ange Law

Go Allie ! We love you

$10

Madeline Mclean

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