I am fundraising for FightMND!
Hi guys,
Over the month of May 2026, I am challenging myself to run 60km to raise money to support FightMND and help beat Motor Neurone Disease (MND).
Last year I met a man called Hobbo. He is a young father who lives in Mosman with his wife Annie and two young kids Lizzy (6) and Henry (4). Henry is friends with my little sister Florence at preschool. In June 2023, a week out from running a marathon, fit, strong and filled with plans for the future, Hobbo was diagnosed with MND.
MND is a rapid, progressive neurological disease that causes motor neurons in the brain and spinal cord to fail, leading to muscle weakness, paralysis, and loss of speech, swallowing, and breathing, with an average life expectancy of just 27 months.
Hobbo says, “I consider myself somewhat lucky in a bizarre way, I understand how ridiculous this sounds coming from a bloke, who can’t speak can’t walk and struggles to move. But I think it’s lucky that it wasn’t sudden like a car accident. I have a chance to say goodbye and make sure that I can impart what little wisdom that I have learned. I focus on what I can still do, not what I’ve lost. I know what matters now. Time. Love. Presence. I spend my days focused on my family."
It's so unfair that such a horrible disease can take the life of someone as amazing as Hobbo. Even though running 60km will be hard, it's nothing compared to the Hobden family's fight and everyone else suffering from this terrible disease.
Please support me by donating to fund research, effective treatments and ultimately a cure for MND.
Thank you so much for your support.
Sebastian
My Achievements
Fundraising page
Updated Profile Pic
Added a Blog Post
Received 5 Donations
Reached Goal
Increased Target
My Updates
Been a tough few days
Thursday 21st May
Another 5.6km done this morning at 545am
Wednesday 13th May Hope you enjoyed the shout out Billy! Share
15.63km down already!!
Tuesday 5th May
Thank you to my Sponsors
$1.04k
Anonymous
$318.90
Mosman Prep - Tian Family
$318.90
Marie-clare Elder
We are so proud of you Seb! Well done. Marie-Clare and Charlie
$267.25
Sam Ellis
Seb while I haven’t met you yet I am mates with your old man. What you’re doing is so great and you should be very proud of yourself buddy. Good luck with the goal.
$250
Anonymous
Go Seb!!! Hard things are always the things worth doing.
$215
Robert O'callaghan
Good on you for running so far for a great cause. The ocalls are very proud of you!!!!
$200
Winston Kwok & Family
Well done, Seb! We are all very proud of you!
$162.75
Jules & Anna Donnan
Go Seb! Have an awesome time running!
$162.75
Richie And Anna Higgins
What a brilliant thing to do, Sebastian! We’re so impressed! Go Seb!!!
$162.75
The Ballantynes
So proud of you Sebastian for giving this a go and supporting the fight against MND. You are a champion!! xx
$162.75
Jane Higgins
Go Sebastian We are so proud of you
$162.75
Jack Beavis
All the best
$162.75
Michael Symes
Well done Sebastian!
$106.12
Lizzie And Henry Hobden
Go Seb! We think you are incredible! Running so far to raise money and awareness for MND! Thankyou from our family and the 1000s like ours x
$106.12
Ollie Frame
Good luck Seb! Such a great cause. From Ollie and Archer Frame
$106.12
Leon Baker
Go Seb!!!
$106.12
Billy Brell
Hi Seb, Billy here. What you’re doing is so great! 60kms is not easy but I know you can do it. Keep going, never give up!
$106.12
Rosie Hutchinson
Well done Seb! Awesome effort. All of the hutches are very proud of your effort.
$106.12
The Duggans
$106.12
Jan Deane
Hidden this is an amazing cause. Good on you for doing the challenge. We are very proud of you! Nino & Janny xx
$106.12
Libby Villiers
Amazing effort Seb!!! You’ve got this! Love auntie Libby, Tom, Clem, Immy and Elodie x
$106.12
Andrew Mcguinness
Awesome effort for such a great cause
$106.12
Oscar Colwell
Good Luck Seb!
$100
Dan Brown
An amazing, amazing initiative Seb. The entire Prep community is behind you. Keep up the great work, especially when you start getting tired! Mr Brown and Rachel
$86.07
Kerin Hurrell
Time to increase your goal! Great effort champ!
$80.96
Jean Kim
Thank you for your work to help fight MND.
$80.96
David Tian
Great run and good luck!
$80.96
Nick Cooper
Great Work Seb!
$80.96
Ted Farrell
Go Seb!
$80.96
Leanne Horridge
Amazing work Seb. Such a great cause.
$80.96
Liam Campbell's Family - Yr 2
Fantastic work, Seb. All the best from the Campbell family.
$80.96
Lucy Messara
$80.96
Luis Ali Millie Xavier Izzo
Good luck Seb!
$80.96
Toby Joy
$80.96
Nikko Muto
Go Seb!!!! Great job doing this!!!!!!!!!!
$80.96
Thijmen & Family
Go Seb! Amazing challenge and so good of you to be raising money for a important cause 🏃 💪☀️ X Thijmen, Rob, Fem and Eva Sophie
$80.96
Tom Robertson
Keep running Seb, you are making a difference!'
$80.06
Anonymous
$54.84
Billie Higgins
Well done Sebastian - very good of you!
$54.84
Nina & Albert Vanneck (3m)
Good luck Seb, what a great cause!
$54.84
Anonymous
$54.84
Carrie Deane
Go Seb!! Super proud of you from Aunty Caz, Lach & Cam
$54.84
Jacqui Levings
Well done Sebastian, this is very inspiring!
$54.84
The Clemmos
Go Seb!!
$40.40
Will Beaumont
Well done Seb- this is amazing- run hard. Will Beaumont
$40.40
Jill Obering
Well done! -William O (3H)
$40.40
Victor Gugger
$35
Chris Venn
Go Seb! Wishing Hobbo and his family all the best 🙏🏻
$33.87
Anonymous
Great stuff, very inspiring!
$33.87
Well done young Sebastian on running for a great cause. Good luck